The Qualitative Open Mic

Neurodiversity Matters: Monique Botha on funding priorities and community justice

Why is the funding agenda for autism research so far from what the communities concerned want? There’s a long tradition of prioritising neurobiological and genetic work over qualitative, but how did it get this way? Sohail interviews Dr Monique Botha about citational justice, emotion in research, participatory research accessibility, and why letting community-led neurodivergence research out of its silo would benefit neurotypical and neurodivergent populations alike. 

Neurodiversity Matters: Damian Milton on double empathy and autistic worlds

Welcome to Series 7 of the Qualitative Open Mic! This series discusses the many ways neurodivergent perspectives can improve the quality, insights and impacts of qualitative health research, and what learnings this can provide for neurotypical and neurodivergent researchers alike. It showcases the critical role of researchers with ADHD, autism, dyspraxia and other neurodivergent experiences in shaping research and knowledge production. 

In this first episode we discuss how mainstream theories of autism have missed the mark by failing to qualitatively explore internal autistic worlds. Sohail speaks to legend among autistic autism researchers Dr Damian Milton about his formulation of this issue, the double empathy problem, and its broader implications for neurodivergent and neurotypical-led research in neurodiversity and beyond. Damian also discusses the importance of autistic-led spaces for surviving academia as an autistic academic, through the work of the Participatory Autism Research Collective.

Qualitative Controversies: Johnny Saldaña on blue collar qualitative research

In an academic landscape dominated by formality and jargon, Johnny Saldaña brings a refreshingly raw perspective with his ideas on 'Blue Collar Qualitative Research'. We speak to him about how to challenge the ivory towers of academia. We also explore his 'kick-ass' article that tackles positionality, voice, ethics, and many other foundational aspects of qualitative research. 

Qualitative Controversies: Hyab Yohannes and Tesfalem Yemane on refugee-led scholarship

Why are there limited voices from sanctuary seekers in qualitative research about migrant health? Tesfalem Yemane and Hyab Yohannes bring a vital perspective on 'refugee-led scholarship', dissecting the challenges and significance of broadening the scholarly space to include those who have first-hand experience seeking sanctuary. 

Controversies in qualitative research: Amy Wells on challenging tokenistic involvement

The involvement of service users in research holds transformative potential, but what happens when it becomes mere tokenism? When is it better to step away? With insights from the National Survivor User Network, we discuss the critical line between genuine engagement and superficial involvement, seeking ways to ensure research remains grounded, relevant, and truly collaborative. 

Qualitative Controversies: health research under siege

Amidst the ongoing occupation and genocide in Palestine, how do qualitative health researchers navigate their work and find their voice? What kind of research is it possible or ethical to do under siege? This episode, Sohail speaks to Weeam Hammoudeh, Zeina Amro, and Layth Hanbali. They delve into the courage, resilience, and ethical considerations that researchers from this region grapple with, touching upon the broader implications for academic freedom and advocacy.

Coming soon: Health research under siege: being a qualitative researcher in Palestine

Watch this space for the next episode in our controversies series - we're translating the transcript for this one into Arabic so we've got a slight delay and will have it out next week. Join us then for "Health research under siege: being a qualitative researcher in Palestine".

Qualitative Controversies: Peter West-Oram on government influence in research

In October 2023, then-minister Michelle Donelan accused members of UK Research and Innovation's EDI committee of holding "extremist views" based on their social media comments on Palestine. She was subsequently forced to retract her statement, but the response from UKRI raised broader questions about whether and how government should be able to influence research. Peter and Sohail get into the details of this debate, covering culture wars, litigious authors, and more.

Qualitative Controversies: Ginger Johnson on emergency response

In this episode we challenge the misconception that qualitative research is too slow and narrow to influence emergency response planning. Despite the common preference for quantitative data in crises, we spotlight the irreplaceable insights that qualitative research provides—insights into human behaviour, cultural context, and community dynamics that are crucial during emergencies. Join us as we explore real-world examples where nuanced, qualitative data has informed swift, culturally sensitive, and effective emergency responses, proving that in the heat of the moment, every narrative counts.

Qualitative Controversies:Tiarna Lee on the machine behind the method

Sohail speaks to Tiarna Lee to explore the frontier of AI's role in health research.explore the frontier of AI's role in health research. While technology offers innovative ways to approach analysis, it comes with its unique set of challenges. From ethical considerations to methodological accuracy, join us as we dissect the potential and pitfalls of integrating AI in research. We ask, “can you have qualitative health research without the heart and soul?”

Tiarna is a third year PhD student at the School of Biomedical Engineering & Imaging Sciences. Her research focuses on evaluating fairness and biases in AI used for cardiac imaging. In her work, she has found that models trained with imbalanced datasets have a worse performance on underrepresented subjects, often minority ethnicities and females. She is currently aiming to find the sources of these biases so that she can then find a method to address and mitigate them.